I feel bad it has been so long since I last wrote. It has been busy - that is true! Between the next diaper change and the next feeding and scrambling to get a couple of things done here and there, life has just gone and I hardly feel like it has been 7 months since we had our little sweetie. But as much as I would like to say it was just being busy and I didn't have time to write, that is not entirely true.
Blake is doing so well. He has beat the odds in so many ways. But the last few months have set me to worrying. Maybe it was my time for this diagnosis to hit me full in the face. I love that little Taco, now turned Burrito, with all of my heart. And maybe that is actually what has made it is so hard to accept everything the last few months. I want him to have the easiest life possible, and already it isn't the easiest thing. Every morning I wake up quickly - mostly because I know I have 20 good minutes to work with Blake and help him before he will get too tired to do any more before his first nap. It is the best time of the day when he is most willing to try the new things the therapists give me to work on with him. So bleary eyed and only half a cup of coffee drunk, I am putting Blake into funky positions to encourage him to sit and to find balance and to start the process of crawling.
But this little kid is amazing and resilient and curious about everything. The thing that has amazed me most is how much he loves and how happy he is. He is full hearted about everything he sets out to do. If he wants a toy, he wants it with all of his little might and works so hard for the pleasure of finally holding that toy between his two hands. If he wants me, he reaches his arms out to me and gives me the biggest and gummiest smile I have every seen. It makes my heart lurch every time. He is so full of life. He had to take a rating test at 6 months for his therapy and he scored incredibly high in emotional development. That warmed my heart and made me feel so great - I know he will get the motor skills and learn to crawl and do everything he should. But you can't teach the heart and emotions this little guy has. And I am so thankful for his love and his persistence even at this early age.
So forgive me for not writing as I should have to keep you all up on what he is doing. Blake is doing fantastically and the last few months have taught me so much and given me so much hope. Kelly, Jackson's mom, said an amazing thing to me the other day - "You know, these little guys beat the odds just by being here! Who's to say how many of those statistics they will turn over!? They are little miracles already". And I love that! My little guy is a miracle!
*Kelly's baby Jackson was born only a month before Blake and was also surprise diagnosed with Down's. He and Blake have play dates and live only a few miles apart!
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